Skip to main content

Volume 3 Supplement 1

ESICM LIVES 2015

Are caregivers knowledgeable and interested in post-ICU outcomes?

Introduction

Long-term outcome after intensive care is a matter of growing interest in the critical care community. As better knowledge of post-ICU outcomes might help improve admission policies, processes of care, or end-of-life decisions, this topic is increasingly covered in medical journals. Access to this information may still be limited for ICU caregivers who play a pivotal role in the delivery of intensive care as well as in decision-making that lead to limitation of care. Whether ICU caregivers have a fair knowledge of long-term outcomes of ICU patients is unknown.

Objectives

Assess what is the knowledge of ICU caregivers related to long-term ICU outcomes.

Methods

This study was performed in 19 ICUs in France (12 MICUs, 5 mixed ICUs & 2 SICUs). We designed and conducted a 42-item survey composed of 3 parts: i) demographic data to assess the profile of the caregivers, ii) caregiver's knowledge of outcome data and possible long-term outcomes for ICU patients, iii) caregivers's knowledge of discharge procedures in their ICU. The survey was distributed to all nurses, aid-nurses, chief-nurses and physiotherapists with a goal to collect at least 25 replies/centre. A specific questionnaire was filled by a senior investigator in each centre to collect centre characteristics and outcome data.

Results

The survey was completed by 445 caregivers (32 [IQ 27-39] y.o.; 80 %female) working in 19 ICUs as nurses (65.2%), aid-nurses (23.6%), chief-nurses (4%), physiotherapists (3.8%) or psychologists (0.4%). Whereas 89% declare that they are interested in post-ICU outcomes, 84% claim they rarely obtain information about patients outcome after ICU discharge and 74% wish they could « systematically obtain news from discharged patients ». Most caregivers claim that they mainly seek feedback from patients with prolonged ICU stays (74%), patients with whom they had a privileged relationship (66%), who had a striking personal history (59%), or from young patients (51%). Patients and their families are the main source of information regarding post-ICU outcomes through letters (71%) or occasional visits (72%). Still, 83% admit to have only rare occasions to meet with former patients. When meeting with former patients, the 2 main topics discussed with caregivers are ICU memories (74%) and QOL (72%), whereas less than 40% discuss physiological and psychological sequels.

Conclusions

Despite high-interest in understanding long-term outcomes of their patients, caregivers have a limited knowledge of what happens after ICU discharge and most ICUs have no systematic approach to collect long-term ICU outcomes. Creation of multidisciplinary post-ICU clinics could help caregivers to better understand the burden of post ICU sequels.

References

  1. Griffiths RD, Jones C: Intensive Care Aftercare. Edited by: Butterworth-Heinemann. 2002, Oxford

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Consortia

Rights and permissions

Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (https://creativecommons.org/licenses/by/4.0), which permits use, duplication, adaptation, distribution, and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.

Reprints and Permissions

About this article

Verify currency and authenticity via CrossMark

Cite this article

Debue, A., Kentish-Barnes, N., Christine, G. et al. Are caregivers knowledgeable and interested in post-ICU outcomes?. ICMx 3 (Suppl 1), A648 (2015). https://doi.org/10.1186/2197-425X-3-S1-A648

Download citation

  • Published:

  • DOI: https://doi.org/10.1186/2197-425X-3-S1-A648

Keywords

  • Rare Occasion
  • Specific Questionnaire
  • Admission Policy
  • Psychological Sequel
  • Discharge Procedure